Tuesday, October 27, 2009

A day to remember.



What a difference a day makes... and a better nights sleep.  I wanted to write about Sunday as quickly as possible before it was tainted with anything other than perfect but it's too late.  I'll still tell you of our blissful Sunday though as it feels much as if I'm sharing food with the hungry.  Sunday, Sunday, Sunday... was the first day that Elijah didn't cry the whole day!  It was also the first day that Steve and I felt remotely like a "family."  Could we even say.... a happy family?  No, it's much too early for happy families but the glimmer of hope was there.  

Elijah was just full of smiles all day, the sun was shinning, the birds were chirping, we were home and it was magical.  Steve took his shirt off and worked outside in the vege garden and couldn't stop talking about how happy Elijah was.  I have to quote him this quote... With so many things going on with Elijah all the time it's hard to know what is wrong and what is right but the only real difference we've been doing with him is feeding him a bottle before and after his meals instead of just after.  So it's possible he wasn't getting enough fluids which was causing his sodium levels to be too high which could've been making him grumpy all the time and we haven't been able to get his blood tested lately to see what his sodium levels are doing so it's been a bit of guess work.  
"Seeing Elijah happy is like a drug for me, it shoots my serotonin levels through the roof!"


Steve's been doing a bit of research on home testing blood salt levels... like how diabetics test their blood sugar levels... it's gotta be possible, it would make it a lot easier that's for sure... anyone heard of one?  

Anyway, here are two beautiful photos of our boy doing so well.  'The morning after photos' I call
them, just as he finished his big bowl of porridge, still in a great mood:)

Thursday, October 22, 2009

Introduction

Hi, Steve and I have decided to keep a Blog to document Elijah's journey now we are back at home as we know many people out there have been following Elijah's journey through Grandad Jules's much needed and appriciated e-mails.  As a result of those e-mails and the feedback we've recieved from them we feel comforted knowing we have an extended family of believers behind us every step of the way.

As most people visiting this blog will already know Elijah's story I won't talk of how we've got to this point but, instead, how things are going with all of us now and we'll keep you updated on Elijah as we go.  So thank you for sharing in our pain and prayers.  Only God knows where we'll go from here.