My apologies on my blog absence, I've been busy. Like really really busy. And I must warn you I'm pretty unreliable these days! So if I say something like I'll write in a couple of days or I'm going to phone you or do this or that then you can guarantee I might only 2 or 3 weeks later or, on the other hand, I might not. I'm trying not to make a habit of it but I'm a list person and since Elijah and housework are at the top of my list not much else gets done. And it also seems like the busier I get the more tangled up my thoughts get which, in turn, means the more daunting a task it seems to untangle them into some kind of straight line! (Which reveals the true reason for my blog absence.) But I'm sure the point of this blog was to talk about Elijah and not myself! Ha, I'm sure...
Anyway, so - my precious Elijah. You've all heard the confirmation that the tumour hasn't grown back between the two MRI's. I'm still unable to put into words how this makes me feel. Disbelief, I guess. I guess it may take a couple of years worth of these MRI's before I can relax or have any certainty of Elijah's future - or maybe that's something we'll never have. At least for now we get to keep him for a little longer.
We've had a few seesaw weeks with Elijah and his sodium levels. We thought we were doing alright until a blood test revealed his sodium levels were the lowest they've ever been, really low! (121 if you know anything about them.) Which means increased risk of seizures or coma. He was just very grumpy and sleepy though. So we decided to up the anti to get on top of this daily struggle; blood tests in Thames three times a week (once a day would be better but that'll be too much driving,) as well as recording all fluid intake and output (weighing nappies) to keep fluids as balanced as possible. Since then Elijah seems to be doing a lot better and just way happier in general, which may also have something to do with his new supplements that arrived from South Africa as we are now working with a naturopath there and also the 3 Elijah's prayer meeting we attended a week and a half ago where we lifted up (not literally) the 3 Elijah's in prayer, in what I like to call, chaotic harmony to the ONE TRUE GOD.
Elijah has also improved in other areas too... eating, sitting, rolling, verbalising more eg. dada but more dada as a sound than a purposeful name. His interaction with us and seeing his little personality start to develop is the best thing of all. He loves touching, scratching, cuddles and kisses and is very affectionate and gentle most of the time. (Except for the occasional bite, sorry Bex!) He may be far from normal but he's getting closer to pleasant and pleasant = Sanity!
That's all I have time for at the moment but keep an eye out for some seriously cute photos of Elijah and possibly some of his scans coming your way.
No comments:
Post a Comment